Looking back over this blog, I hope it has been a helpful resource for others who might be facing this terrible situation. But I realize that we were incredibly "lucky" in all respects - we had time and resources to research, find great doctors, and go to them; we got an incredible outcome from the surgery given the initial diagnosis. Because time is also a very important factor, my feeling is you have to just try your best to assess the alternatives and go with the best choice that you have at your disposal and not look back to really question any of the decisions made. The landscape on what works best may have changed in the last few years as well.
