We went back to Johns Hopkins to finally meet Dr. Laheru. This is the
last oncologist we have on our list to meet. My mother asked him what
kind of name "Laheru" is and he replied that it is Indonesian. Dr. Laheru
went over my mother's history and then went over his recommended treatment
plan. This would be radiation with Xeloda and possibly Tarceva followed
by Gemcitabine alone. One thing I felt is that the Hopkins folks stress
that my mother's prognosis is very good from surgery alone and that this may
have some implications for her treatment plan.
Dr. Laheru also mentioned in response to our question that Xeloda
was probably equivalent to 5FU but more convenient. He said that if you
drew and tested blood after somebody had done 5FU vs. Xeloda, no doctor would
be able to detect any difference. He also mentioned that the levels of
Xeloda that they would give would also be treating the cancer "systemically"
right from the start.
We also talked a lot about the GVAX vaccine. Apparently, they are planning
a booster study that they are going to open sometime later this year. He said that
my mother would be eligible to receive the vaccine under this study although this
would happen after she finishes her chemotherapy. I asked if there were any
ways to offer it sooner and he said unfortunately there was no way that would be possible. I really hope that this study gets launched and that the criteria are such that many people can benefit from it.
He mentioned that Hopkins might be able to offer the VMP but it seems like
it might be a better idea to do the first part of the protocol at Virginia
Mason since they are so experienced with it. We could do the latter part at
Johns Hopkins. He wouldn't recommend using Avastin as that is too toxic.
My mother really liked Dr. Laheru and mentioned afterwards a few times that we should
use Johns Hopkins. As I mentioned, the last one always seems to be winning.
Dr. Laheru stressed that treatment should begin soon (we are at 6.5 weeks post
whipple). We now have to make the big decision this weekend.
Dr. Cameron sent us a very thoughtful thank you note for the scarf today.
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